My Number One Supporter!

My Number One Supporter!

Friday, April 20, 2012

Personal Update 04/20/12

Ok...so a lot has happened since our last post and I mean a lot. First of all, do not exercise! Here is what happened since we last spoke:

I was continuing to see Dr. Battle and I continues to complain about my back. He rolled me over held his hand over my back and said 'You have torn ligamnets all back there and I think you need Prolotherapy.' Yes, I thought it was really weird how he diagnosed me but that is just how he does things and I have learned to choose who I beleive based on how I feel rather then what I think. I felt he was right. However, I did not feel he was the right one to give me Prolotherapy and I needed to time to adjust to the idea. I tried my other theory of building the area up, but there were all these nagging signs that pushed me back into considering Prolotherapy. From there I began to seek out Polotherapy from someone I felt a little more comfortable with. I followed the signs and I eneded up with Dr. Curtis Fandrich of Magnolia, Texas. From my first visit with him I had this renewed hope that I haven't felt in a really, really long time. Here is the interesting thing, he beleives that my symptoms are not beging caused by the Tarlov Cyst (which I know was originally a maddening thing to hear from a doctor), but rather he beleives that I tore all of the ligaments that connect my si joint, my pelvis, and my hips together. This makes sense as I did fall 4 month prior to getting my first symptoms. I have mentioned this time and time again to doctors, but they never thought it was related so I just assumed maybe it was what brought on my symptoms from the Tarlov Cyst so I ignored it, foolishly, and went along with what the doctors were saying. I began my Prolotherapy Treatments about 3 months ago (1 treatment every 2 weeks) and the improvement that I have made is nothing short of miraculous!!!!!!!!!!!!!!!!! I have reduced my symptoms to 30% of what they were. Life is GREAT! More importantly...life is HOPEFUL.

Before I always had referred pain in my abdomen that the doctors always exclusively ignored (obviously because they do not have an understanding of how the body functions as a system rather then as individual parts). But, now that I have a doctor that sees things as a whole he has explained that it is referred pain from my back and with each treatment there is a further reduction in that issue as well. I am continuing to get treatments while doing very light physical therapy to help work some of the areas that have been very neglected for the past 3 years as I suffered through this nightmare. I can hardly beleive it so I will say it again...I get BETTER and BETTER with each treatment. I implore, beg, gravel, and plead with you to please look into Prolotherapy as a treatment option. Especially before surgery. You have nothing to lose.

This is the sum total of my intelligence on the noninvasive treatment of Tarlov Cysts that I have painstakingly gathered and tested over the past 3 years. Please, take my advice on this one and at least look into the possibility of it. Thank you for supporting me through all of this and thank you for giving me something I can be a part of while this condition sometimes makes me feel completely alone in the world. I will let you know how things continue to go, but these are by far the best results I have gotten to date.
Love you guys.

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Thanks for your comment! With so little known about this disease it is up to us to become the authority and advocate for better options!